Shouting in the Dark

I love the moment at dawn when the birds begin to sing. 

My mother is shouting in her sleep as I write this. Sometimes she talks. I tip-toe to the door of her room and listen if she's speaking clearly enough to be understood. I keep waiting for some profound revelation from the beyond because she's usually speaking to dead people. Like maybe she has a message for me from my dad. Or maybe there'll be some long-held family secret revealed. Usually she's lost though. She and her twin sister are in the woods and trying to find their way back home.

My mom slept most of the day. Mitigating pain and keeping the sufferer coherent and awake is a challenge, apparently. When she was still asleep at 12:30 I called the hospice nurse, and she came over and checked on her. All her vital signs were great--probably better than mine at that point. She got up and ate toast and yogurt and coffee and juice. Then she went back to bed. I slept on the couch and we both woke up around 6 p.m. I turned last night's chicken into chicken salad. We had toast and an avocado with it and called it good. By the end of the meal, I had to keep my eyes on her because  she was dozing while lifting her glass to her lips. This is not a new thing. She does it regularly and the result is frequently a spilled drink and sometimes a broken glass. It pisses her off. I've never seen anything quite like it. She's here in the present and then she slips into some other reality, mumbling, talking, then she's gone and there's coffee or a martini in her lap.

The nurse made new recommendations for the meds, so we'll see if my mom Rip Van Winkels her way through tomorrow or what. The pain is pretty much gone though. When I ask her how she feels or how her pain is, she says, "Smoooth." She used our fabulous lavender microwave hot packs only once today. Before hospice the hot packs were constantly employed. The microwave blew a fuse on Sunday, and if we hadn't already had the okay to increase the pain meds, it would have been a gruesome day.

I actually sent out some writing today. Lately I've been feeling like my focus has just gone to hell, and that there's just so much rejection, and I can't apply for any fellowships, and I can't really participate in the literary scene, and I wish I were at AWP, but I'm not, and you know, whinewhinewhine. So I had some wine, and I thought, rather dejectedly, I'd see how my book was doing. It's okay. The ups and downs of book sales are completely perplexing. At least at this level. If you're on Oprah, yeah, I'm sure your sales go up. The things I'm doing to promote my book are less visible. A little like shouting in the dark.

Report from Pillville: the ER, the pharmacist, the nightmares, and the nose

I used to travel.

Let me begin by suggesting that you read  THIS. I had two dogs and two cats then. All of them getting older with a myriad of problems. By some stroke of incredible luck my lovely niece and her fiancé were willing to pet sit while I was out of town for weeks. I think I may have gone to Greece.

I may be completely under the control of an overactive ego, but I'm pretty sure I am now irreplaceable. My human "patients" can not be sated by meds tucked into jerky treats.

The man who loves me had a typical rocky night last evening. Up and down with opiate nightmares and pain. Last night was night six post-hospital. He's in command enough now that I pretty much roll over and sleep through most of his getting in and out of bed. Guiltily. But I have no musical talent. I cannot paint or draw or design costumes. Sudoku is a mystery. I am, however, the world champion of sleeping. So I do what I am good at.

The plan this morning was that I would go off to the blood lab with my mom for a routine blood draw and leave him alone for an hour. Which turned into four hours because after she threw up in the wastebasket at the blood lab and complained of a splitting headache, I drove her to the hospital. The man did fine while my mom was rehydrated, given anti-nausea meds and some morphine. I did less well while there in the ER cubicle, fantasizing about nursing homes in Iowa while I simultaneously trembling at the thought that she might be dying. My own heart was racing, and I wondered about the physical toll on me  of all these ER visits. For my mother, a CT scan of the  head. X-ray of chest. Swab of nose to test for flu. EKG. And a paper cup of water for me. It turned out my mother was fine. Maybe a stomach virus, they said.

And when we got home, I found her morning meds still in her pillbox. She interpreted her orders to fast for her blood test as no water--and so did not take her pills. Which would explain her to the moon blood pressure this morning. Closer oversight on my part is now required.

While my mom slept most of the day, the man and I sat on the couch calling his doctors and the insurance folks. How to get his check-up x-ray here in the county where he is recuperating instead of in L.A. county. What do the instructions "take 3 times a day" really mean. What is the difference between hydrocodone, oxycodone, and oxycontin? Is there any difference at all between Percocet and Norco? His eureka moment that the reason he isn't sleeping is his nose. And that he needs antihistamines.

I was thrilled to manipulate a trip to the pharmacy into a dusk walk (only a tad guiltily) under billowing clouds  to discuss the nose with pharmacist, who, after considering the myriad of meds, cautioned against antihistamines.

Somehow we all managed to eat dinner together. And now I sit here on the couch with the one remaining resident of the old Pleasure Palace and Pet Hospice. Piper, the ancient cat, just sneezed. But she's okay. Nearing 100 in human years, she's heartier, I believe, than the human residents of this house. My mother is in her room murmuring, the man upstairs searching for a way to comfortably breathe while his body adjusts to the absence of a section of his left lung. I am neither murmuring, nor missing a body part. My body is not racked with pain. And I know that I am kidding myself when I say that I am irreplaceable. I could go nuts and hop a plane to Greece tomorrow, and love and care from others would fill the void. Love and its path of least resistance. I bow down to the love. I bow down to the path.

Notes from Margaritaville, Pillville, and The Love Shack

the love shack a.k.a. my bedroom

It is big deal to sleep next to someone you love when that someone is in pain. Somehow you are asleep and somehow, simultaneously, you are awake. You hear the moans and winces and whimpers, and you are sorry and disturbed, but you realize until that moment you have been sleeping pain free while the person next to you has not been so fortunate, and you ponder life's big questions until...you don't. You wake long enough after the next moan to wonder if you should wake him and ask if he needs a pain pill or the heating pad or should you try digging your fingers under his shoulder blade, but you think better of it because he's silent now. You hope he realizes how completely happy you are that he's next to you despite the way things are currently because it's pure comfort to know what is going on first-hand and not have to imagine him in his own place alone and guess at how that's going. When he sits up for a second sometime in the middle of the night, knowing you're awake too, and he asks you if you're sleeping okay, you want to try to explain what comfort he's providing you by being there and how it doesn't really matter that you've been waking up between stretches of sleeping quite well, but it might be too long of an explanation and then maybe neither of you will get back to sleep, so you just mutter something positive. But later when you are in the middle of a nightmare in which your mother hands you an bloody apron and a pair of gloves and says, "These are the ones that were used in the murder," and she gives them to you like you are supposed to do something--what, you don't know--wash them? Bury them? You don't know, so you scream and scream. Then he wakes you so your terror can stop. You thank him, and you think about terror and pain and how they're alike and different, and somehow you both sleep again.

Readers, you may feel that you have missed a blog post, but you have not. I have been rendered silent (for about as long as I have ever been silent here on this blog) by the fact that the man who loves me has lung cancer. There will be surgery. There will be chemo. Right now there's pain. And in as much as this man and I have endeavored to maintain our separateness throughout this love affair we've been having for the past 5 years, I cannot say how much I will write about the part of this story that is happening to him. But it is a fact that some small part of it is happening to me. So, I will go back to silence or write about that part.

And as for the regular proceedings of life in Pillville, my mother has a stronger pain pill that required giving up her martini for a few nights. That dream recounted above--well, I think it was probably me she murdered and just to really let me know how much she detested my delivery of the no alcohol tidings, she not only murdered me, but also asked me to clean up the mess. She had terrible back pain after returning home from the hospital, but it has abated and tonight, due to the tapering off of the meds, there will be a martini, she has just informed me. As for me, I think a glass of my favorite cheap red will go nicely with this.

And in Margaritaville today the sky looked like a pile of cotton balls.

The fishing was easy. If you were a heron.

Due to my inept photography, you can't see that the heron has a large fish in its beak. The seagull wants it.

And the guardian of the neighborhood was in her usual place, watching over all of us. Or at least the rodents in the empty lot. Blessings upon all of us is what I hope for. Even for the heron's fish. Even for those rodents as they feel the prick of talons as they are swept skyward.

Death, Pain, Anger, and Santa on a Tractor

My mom is home.

I've explained and re-explained the difference between pro-biotics and antibiotics. We've gone over the changes in her pain meds. I made soup for dinner, made sure to offer her a bowl of ice cream, and I just rolled some Max-Freeze onto her back. She's not quite herself, eyes like giant hollows, walking in super slow-mo. Each hospitalization, while life-saving, delivers its own special beating and sends her home weaker.

My father died suddenly of a massive heart attack one night after dinner. I was away at college and witnessed nothing of the the actual event of his death, yet that quick drop to the floor is how I've always imagined my mother would leave this life. It's now seeming quite likely that I was wrong.

A sudden death seems a mercy to me. To be alive one moment, aware of a brief pain perhaps, and then gone. No needles. No indignities. No litany of agonies. No small chiseling away of the mind and those elements of personhood that once were so integral and now are gone without a trace.

I really don't think very far ahead these days, and I don't worry. I do the things I can do. I have confidence that I will do the things, solve the problems, and ask the questions and find the answers, and change what needs changing, and just keep going. And even after I do all of that, she'll die.

Hahahah, life, you trickster! is an attitude that I can usually muster these days. My tire pressure light comes on as I start my drive to the hospital in the pouring rain. Okay. Hahaha. We take a detour to the tire store. Oh, now there's a Christmas parade and I'm behind Santa on a tractor. Okay. Hahahaha. Oh, the home physical therapy didn't get set up like it was supposed to? Well, less funny, but we'll survive. A pain medication situation that doesn't seem to be working? Well, I could get a little angry, but anger won't stop the pain, so never mind...but still, I'd like to engage in the luxury of rage. For most of my adult life, it's been evident that the lessons learned through difficult situations don't always come up again and give one a chance to flaunt that back store of knowledge. There's always new stuff. Like never ever get discharged from the hospital on a Saturday--and especially don't get discharged on a Saturday if they're going to fuck with your pain meds.

But I'm ready. Sleeping on the couch, maybe, with the MaxFreeze at the ready. Tramadol dosages researched, ready to say go ahead, just take it 2 hours early. And aware, at least right now while I'm still wide awake, that anger at anything won't do anything good.

Les Portes de Bordeaux and Wild Night in Margaritaville

It's old news by now. But let me tell you how wild it was.

Last Thursday my mom had more work done on her root canal. Which meant that on Friday she tried out a new pain pill since the Vicodin did not work out the last time. Tramadol. Who names these things, and how can I get a job like that?-- because I love to name things. Tramadol is not a fabulous name for a pain pill, in my opinion. Trauma Dolls, however, might be a great name for a band. If you want great names for meds, read George Saunders's short story, "Escape from Spiderhead." It is a mind-blowingly great story. The names he invented for the medications induced in me serious naming envy. After reading that story, I damn near had to take some Nocovette, I was so sick with jealousy.

But back to the wild night. On Friday evening, we had dinner on a boat. Except that we were in our dining room. So not really on a boat.

Stay with me.

As my mom gingerly chewed her way through her dinner of soft foods, her head nodding, her eyes closing from time to time, M and I took turns waking her. I'm not sleeping, she'd say. Which is what she always says on these narcoleptic journeys. This, however, was a narcoleptic journey on Tramadol, and there was some serious tilting. More serious than usual. Starboard. Port. Starboard. Port. M and I shuffled our chairs closer and closer, at the ready to keep her from going overboard.

Which reminds me of a hysterical story one of my kids told me ages ago about a class of middle-schoolers who freaked out their teacher by quietly inching their desks forward every time the teacher turned to write on the blackboard.

So every time my mom opened her eyes, M and I were closer. Finally, we were all in a row. "All right," she said to M., "you do the dishes. I'm going to bed." And she did. And the next day, she was much better.

And somewhere during one our wild Margaritaville nights this past weekend, we tried cheap wine #2, Les Portes de Bordeaux 2009. Nice. Very nice. Did you know that portes in French means door. I love beautiful doors. The doors pictured in this post are on the Greek island of Naxos, not Bordeaux. But for some reason, I've been thinking of these doors.

And just to sail onwards on this random sea, if there were, as daughter C. would like, an entire channel devoted to footage from Russian dash cams, here is my list of show names:

Anna Kamerina

Brothers Kameras On or Off

Idiots

Crime and Punishment: Live!

Cheap Wine # 1

"So......"I said to M. "On a scale of 1 to 10, 10 being the most fabulous bottle of wine you've ever had for 4.99, what do you think of this?" We were drinking Chiusa Grande Tommolo Montepulciano d'Abruzzo. It sounds fucking fabulous, doesn't it? Like you could whisper "Tommolo montepulciano" in a lover's ear, and things would just get more and more grande as the night went along. But, sadly, no. That is not what we thought of cheap wine #1.

There's always tomorrow. Right?

And since, in the Province of Pillville, things are a bit rocky at the moment after a visit to the endodontist, I have no business being lost in oenophilean bliss. I will sleep with one ear and one eye open, hoping my mom gets some relief from the pain pills she needs to weather the aftermath of her root canal.

There's always tomorrow. Right?
photo credit: lerevdr.wordpress.com