Showing posts with label Lung cancer. Show all posts
Showing posts with label Lung cancer. Show all posts

Friday, December 25, 2015

Margaritaville: The Christmas Report

The tree, complete with my mom's crocheted snowflakes

Front hallway lights and unintentional selfie
The Christmas lights went up late this year due to the sore throat and cold. It was a joy to be feeling well enough to snare a tree and pull down the boxes of lights and get to work. I was feeling the satisfaction of the season as I stepped down the ladder, admiring the last string of lights atop the armoire in the dining room, when what to my wondering eyes should appear...well, pretty much nothing. When I opened my eyes, I was on the floor next to an overturned dining room chair with the ladder on top of me.

My friend Pete was here, a few feet away in the kitchen, baking cookies. I explained as quickly as I could that I hadn't hit my head, that I hadn't fallen from the top of the ladder, but simply missed the last step and probably would have managed to keep my balance if I hadn't collided with the chair. In those first moments I felt worse for him than for myself, having tended to a few emergencies with my mom during the years she lived here and knowing all too well those initial moments of pure panic and  the awful scenario of spending the holiday in the ER. 

I was lucky enough to forgo the sleigh ride to the hospital, but I've got some bruised ribs and a sore tailbone. And I'm sort of thankful for the reminder of how life can change in an instant. I know that. We all do. And I suppose it's good to forget it now and then and just be caught up in those times of joyful ease, but we also need to know that it can all come crashing down.

And so here I am this Christmas Day, thinking of my mom and hoping she's having a good Christmas in Iowa, thinking of Dan as I struggle for a good deep breath since the site of my injured ribs is exactly where his incision was from his lung cancer surgery, and last night I told the story of my dad and our family rituals protecting us from  Christmas tree danger. We love the distant, the dead, the living, and the light, and the darkness.

And speaking of light and darkness, I happened to catch this from my bedroom window as it streaked past.  

O star of wonder, star of night,
Star with royal beauty bright,
Guide us to thy perfect Light.

Of course, I didn't think of that at all at first. I thought the worst--plane on fire, alien attack, end of the world. That's the way I am. And I wish you a very Merry Christmas. 


Tuesday, May 27, 2014

Sublingual


This comes from Anne Lamott’s book, Traveling Mercies:
All those years I fell for the great palace lie that grief should be gotten over as quickly as possible and as privately. But what I’ve discovered since is that the lifelong fear of grief keeps us in a barren, isolated place and that only grieving can heal grief; the passage of time will lessen the acuteness, but time alone, without the direct experience of grief, will not heal it.

I am already grieving although the man who loves me is still among us. Today he ate half-dozen bites of watermelon, a strawberry, two or three walnut halves, the tips of fork tines coated with almond butter, and a thimble of latté. Oh, and two bites of chocolate ice cream. He told me a dream, and I tried to hang onto to it, but lost it. Or most of it. He was involved in a project, he said. In the first try at the project he was disconnected from everyone, and then in a different dream (or was it the same dream and just a different project?) everyone was working together......on something. It's hard to focus on words. There's the hum and hiss of the oxygen machine. And the place has its resident screamer. I don't think he hears her. But maybe he does. He and I have other things to talk about. The taste of morphine under the tongue. Sublingual. We talk about his dreams. His drugs. While I hear the  woman screaming down the hall, a woman we don't talk about. But a woman screaming down the hall Is a woman screaming down the hall. I hear the staff interacting with her.They're doing okay. She still screams. My only hope is that she's not in pain.

"You have to buckle up," my mother said to me tonight as I sat on the couch weeping. Buck up, I suppose, is the phrase she was after. A swing and a miss. Like so much of my communication with her these days. I was speaking to the man's sister on the phone. Is there anything I want from his apartment? Everything. Nothing. Him. Us. My mother told me and the man's daughter, who was sitting beside me on the couch, how her husband (my father) died standing up. Just like that he was dead. He only fell to the floor when she tried to move him. It was terrible, she said. It was.

"Are you going to the nursing home tonight?" she asked as she shook the last drops of martini into her glass. A swing and a miss. "Sure," the spiteful horrible grieving me wanted to say, "I'll leave you here stumbling and shuffling and go lie next to him." But I left those words under my tongue where they belong. Sublingual.

Saturday, May 24, 2014

Hopice:That was Yesterday/This is Today/Tomorrow is Tomorrow/




Yesterday:

We meet with the hospice rep in the hospital room of the man who loves me. Immediately, with a sad-eyed dog look and a honeyed voice, he blurts out a bunch of shit about how the hospice “can be there for us 24/7.” 
"Well, stop right there," I say. "So there could be someone 24/7 at my house if I took D home with me for hospice?” I'd already spent two or three days figuring out that wasn't possible. And that the 24/7 would be necessary since I also care for my mom.
Mr. Hospice Guy, henceforth known as The Tool then tells us nope, well, not really and begins talking about respite care only he keeps saying respice like it was a weak rhyme with hospice. If we need respice care, that’s 24/7, he says.  For maybe 3 or 4 days. Tool. He calls D “young man.” Tool. He keeps saying transition and transitioning. 
"You mean death and dying," I say. He keeps confusing Medicare and Medi-Cal every single fucking time he speaks. Could we please change the names of both of those programs? How about ElderMed and PoverMed so Tools can get it straight. When he leaves, I would chug a glass of poison if I could get my hands on one. Bartender, drinks are on me. A round for everyone at the bar.

Today:

A woman in an exquisite rose-colored polka-dot dress comes to fill out the hospice forms. She manages somehow to be simultaneously all-business and kind. After I get D settled in at the nursing home, the hospice nurse comes. She's wearing a pink smock with the name of the hospice and scrubs with hearts, but she's direct. Full of information about pain meds, and hope for being comfortable without being a zombie. She's asks if the goal is to get D to return home. "I would love to have him at my house," I say, giving her the facts of my seemingly impossible situation.
"It might not be impossible," she says. "Talk to the social worker. They have lots of community resources."

Tomorrow: Who the hell knows? For tonight, the man who loves me is in a nursing home. I'm sitting on my couch. Watching HGTV. I watched endless hours of HGTV after my divorce, never changing the channel. Maybe a couple of weeks from now, he'll be next to me, and the two of us will be staring a TV show where people obsess over granite countertops and his and her closets.

The Pie:

I was gone from 10:00 a.m. until after 6:00 this evening. M and her girlfriend stayed with my mom, bought groceries, reminded her to drink her Ensure,  made her dinner, AND they made a pie. Mixed berry. Gluten-free crust. It was beyond divine. Maybe this is a harbinger of the love and support that awaits us.




Thursday, May 22, 2014

Report from Pillville: The Other Side of the Story

While things are going well with my mom (the CT scans did NOT show any cancer or tumors as cause for her weight loss,) things are going less well for the man who loves me. Still in the hospital, he's not really feeling great. However, his appetite might be making a comeback. I will take good news where I find it.

I took an early morning walk on the beach before I went to visit him and photographed from a  different point of view. You've seen dozens of pictures of the water, the waves, the islands on this blog, so how about this for a change?

view of the sand and the sky taken standing in the ocean

Years ago when I was acting, a sage director once told me it was absolutely essential to step out of the character's skin before leaving the theatre, especially when playing someone sick or dying. I frequently wonder what it's like to have the ancient body my mom possesses. My knees are 61. What do almost 90-year-old knees feel like? I wonder what it's like to "pull for breath" as my boyfriend so often says he does. I wonder about so many of the things that he and my mother are going through. I put myself in their shoes, but only for a brief moment. Then I step out again.

Friday, May 9, 2014

A Story in Pictures

LAST NIGHT'S MIDNIGHT SUPPER
THIS AFTERNOON'S PAJAMA PARTY
THIS EVENING'S VISIT

Tuesday, April 29, 2014

We Don't Know What We Don't Know


Somewhat less than three decades ago, I spent a night in this hospital giving birth to my older daughter C. If you had told me then that my husband would leave me for another woman and start a new family, I simply would not have believed you.

If you had told me then that I'd be in this same building today under the same bright blue sky on similar a hot day with Santa Ana winds brewing--this time sitting on the bed of the man who loves me, I would have looked at you blankly and asked, "Who?"

The daughter is a grown woman now. The ex-husband exists only at the crumpled edges of my memory. But the man, sick as he is at the moment, is a presence as wide and warm and sheltering  as that blue California sky.

Thursday, January 30, 2014

Report from Pillville: the ER, the pharmacist, the nightmares, and the nose

I used to travel.

Let me begin by suggesting that you read  THIS. I had two dogs and two cats then. All of them getting older with a myriad of problems. By some stroke of incredible luck my lovely niece and her fiancé were willing to pet sit while I was out of town for weeks. I think I may have gone to Greece.

I may be completely under the control of an overactive ego, but I'm pretty sure I am now irreplaceable. My human "patients" can not be sated by meds tucked into jerky treats.

The man who loves me had a typical rocky night last evening. Up and down with opiate nightmares and pain. Last night was night six post-hospital. He's in command enough now that I pretty much roll over and sleep through most of his getting in and out of bed. Guiltily. But I have no musical talent. I cannot paint or draw or design costumes. Sudoku is a mystery. I am, however, the world champion of sleeping. So I do what I am good at.

The plan this morning was that I would go off to the blood lab with my mom for a routine blood draw and leave him alone for an hour. Which turned into four hours because after she threw up in the wastebasket at the blood lab and complained of a splitting headache, I drove her to the hospital. The man did fine while my mom was rehydrated, given anti-nausea meds and some morphine. I did less well while there in the ER cubicle, fantasizing about nursing homes in Iowa while I simultaneously trembling at the thought that she might be dying. My own heart was racing, and I wondered about the physical toll on me  of all these ER visits. For my mother, a CT scan of the  head. X-ray of chest. Swab of nose to test for flu. EKG. And a paper cup of water for me. It turned out my mother was fine. Maybe a stomach virus, they said.

And when we got home, I found her morning meds still in her pillbox. She interpreted her orders to fast for her blood test as no water--and so did not take her pills. Which would explain her to the moon blood pressure this morning. Closer oversight on my part is now required.

While my mom slept most of the day, the man and I sat on the couch calling his doctors and the insurance folks. How to get his check-up x-ray here in the county where he is recuperating instead of in L.A. county. What do the instructions "take 3 times a day" really mean. What is the difference between hydrocodone, oxycodone, and oxycontin? Is there any difference at all between Percocet and Norco? His eureka moment that the reason he isn't sleeping is his nose. And that he needs antihistamines.

I was thrilled to manipulate a trip to the pharmacy into a dusk walk (only a tad guiltily) under billowing clouds  to discuss the nose with pharmacist, who, after considering the myriad of meds, cautioned against antihistamines.

Somehow we all managed to eat dinner together. And now I sit here on the couch with the one remaining resident of the old Pleasure Palace and Pet Hospice. Piper, the ancient cat, just sneezed. But she's okay. Nearing 100 in human years, she's heartier, I believe, than the human residents of this house. My mother is in her room murmuring, the man upstairs searching for a way to comfortably breathe while his body adjusts to the absence of a section of his left lung. I am neither murmuring, nor missing a body part. My body is not racked with pain. And I know that I am kidding myself when I say that I am irreplaceable. I could go nuts and hop a plane to Greece tomorrow, and love and care from others would fill the void. Love and its path of least resistance. I bow down to the love. I bow down to the path.

Saturday, January 25, 2014

How to Heal


First this happened.


And yesterday, after nine days in the hospital, this. Welcome home committee included Piper, the ancient cat.

Tonight there was even a little music.


The daughter of the man who loves me is staying here, too--and that has been the silver lining--getting to know her a bit. Today she slept and rested most of the day. The relief crash. I'm feeling it, too. The sweet slowdown. The knowing (as much as we can know) that this will all be okay.

We are all burrowed in. Heads full of song. Bellies full of meatloaf. Present full of wellness.

Wednesday, January 22, 2014

Welcome to the Hotel California



2007: The 30-year marriage ended. Husband ensconced with a 34-year-old. Somewhere in the timeline that ensued, I'm  pretty sure I told everyone that all I wanted was dinner and sex (not necessarily in that order) and a sign to hang on my bathroom door that said "Check-out time 12 noon." A lot has happened since then.

Tomorrow the man who loves me will move in temporarily while he recuperates from lung cancer surgery. Everything is so fucking temporary. You are temporary. I am temporary. And yet,  we are permanent, too. If I had a sign to hang on my bathroom door now, maybe it would say, "Welcome to the Hotel California. You can check out any time you want, but you can never leave."




Monday, January 20, 2014

Word of the Day

pneumothorax (plpneumothoraces) is an abnormal collection of air or gas in the pleural space that separates the lung from the chest wall and which may interfere with normal breathing.

Not a particularly happy word. The happy part is that the pneumothorax,  in the lung of the man who loves me, is small. It should heal itself, the doctor says. Meanwhile, he's pretty much confined to his hospital bed. I have confined myself to my bed in solidarity.


And doesn't the Glendale train station look stunning at night?






Sunday, January 19, 2014

I confess: I'm fickle

The Glendale train station is an architectural gem
Cheating on the freeway system that I professed my love for yesterday, I took the train to see the man who loves me this morning. I awoke at 3:30 a.m. (and yes, that's when he awoke, too, I learned) and couldn't get back to sleep. Brimming with worry, I decided I would leave my mom home alone for a few hours and pay a visit to the hospital.

More train station architecture

So I trained past green fields and fallow fields.


Suburbs where horses reigned,



Orchards....


Barren rocks...


The weird temporary plastic green houses sheltering some crop or another that you see around here,


and strawberry fields...forever


Back to this.


Early this evening, I learned that the man who loves me was finally moved out of the critical care unit.

Dear Ozzie,


Your bed is ready.

Love, Harriet

Friday, January 17, 2014

Hospital: Day 3 or How I learned to love the L.A. freeways--and thank you

The infamous 405, (as seen from the Getty Museum) looking like a river of molten lava

I moved to Los Angeles from the midwest in 1975. I didn't have a car, so I took the bus to work, and my boyfriend drove me anyplace else I wanted to go. The freeway on-ramp in our neighborhood was also an off-ramp (I'm not going to explain this--if you don't get it, be glad.) When I finally started driving in L.A., I would cry--no matter if I was merging in or getting off. Thirty-some years later, I still loathed driving the freeways.

It was a big relief for a million reasons when I moved out of L.A. to my little paradise up the coast. These past few days with the man who loves me in a suburban L.A. hospital, the freeway speeds me to him. Five lanes going exactly where I want to go.

This marvel of modern urban engineering also delivered my friend Toni to my house this morning where she is hanging out with my mother, who after her tug of war with the neurologist yesterday, has fervently promised to be good, while admitting that she should not be left alone for hours and hours. (More about that in the next report from Pillville.) This evening the freeways will speed me to the nearby house of a couple more friends where I will enjoy their good company and the antics of their handsome cats before I'm given a bed for the night.

Then tomorrow, back to the hospital for day 4. The man who loves me is doing well--as well as anyone can do after such a traumatic surgery. The cancer is out. The road ahead of him will not be a fast and furious freeway. But on that slow and narrow lane that leads back to wellness, all I ask is that it be smooth.

Thank you all so much for your good wishes.

Sunday, January 5, 2014

Little Victories



I had it all figured out at the beginning of the week. After the four ER visits in one month with my mom, it was clear that I needed to change everything.

I ordered the fall detector button. My mother and I went adult day care shopping. "The second one is the best one," she said enthusiastically, her smile for the camera smile frozen onto her face. I told various people, including the social worker at the day care place that I needed someone to come into my house a few mornings a week as well. Following what seemed to be other prudent advice, I bought keyed doorknobs for my bedroom and the daughters bedrooms--what with "strangers" coming and going--and made arrangements to have them installed. The schedule for the day care place was worked out including the pick-up and drop-off. My world cracked opened so wide I almost felt agoraphobic. What would I do until 2:30 on Tuesdays and Fridays? Would the placid silence inspire me to write? Would I be able to read without getting up to see if the moaning or swearing or banging around was something more than crying wolf? Would I go out to lunch with a friend? Take off early for a weekend away if M could come by on Friday afternoon? I could do anything I wanted for six straight hours, knowing that someone else was responsible for my mom.

Friday evening she told me she wasn't going to get on a bus so early (9:00 a.m.) in the morning. She simply was not going to do it. The therapy chairs, the hot packs, the massage for arthritis pain, live entertainment, other ladies to crochet with, physical therapy, dancing--none of it could change her mind. "Well, great," I said, Now, I'm a prisoner."
"Then have someone come in to babysit me," she said, obviously not happy about that either.

Meanwhile the man who loves me and I were squabbling. "But you said..."
"That's not what I meant...."
"You absolutely said that."

In a completely black mood all day yesterday after the glow of yoga quickly dissipated, I raged and mulled unable to do much of anything except walk around and around my neighborhood. I woke every hour last night asking myself what sort of a person picked fights with old ladies and guys with lung cancer doped up on pain killers.

Today I decided I would read in my room with the door closed and some non-distracting background music to muffle whatever was going on downstairs. An easy book. Something engaging. So I picked up an Elmore Leonard novel and napped every ten pages or so feeling like perhaps I should be the one going to adult day care, and asking someone to accompany me on my doctor's appointments. At 4 p.m. I woke in time for a sunset walk.

I didn't jump in the marina or stop a boat and ask to get on. I didn't go to a bar and drink ten margaritas.


Monday, December 16, 2013

Notes from Margaritaville, Pillville, and The Love Shack

the love shack a.k.a. my bedroom
It is big deal to sleep next to someone you love when that someone is in pain. Somehow you are asleep and somehow, simultaneously, you are awake. You hear the moans and winces and whimpers, and you are sorry and disturbed, but you realize until that moment you have been sleeping pain free while the person next to you has not been so fortunate, and you ponder life's big questions until...you don't. You wake long enough after the next moan to wonder if you should wake him and ask if he needs a pain pill or the heating pad or should you try digging your fingers under his shoulder blade, but you think better of it because he's silent now. You hope he realizes how completely happy you are that he's next to you despite the way things are currently because it's pure comfort to know what is going on first-hand and not have to imagine him in his own place alone and guess at how that's going. When he sits up for a second sometime in the middle of the night, knowing you're awake too, and he asks you if you're sleeping okay, you want to try to explain what comfort he's providing you by being there and how it doesn't really matter that you've been waking up between stretches of sleeping quite well, but it might be too long of an explanation and then maybe neither of you will get back to sleep, so you just mutter something positive. But later when you are in the middle of a nightmare in which your mother hands you an bloody apron and a pair of gloves and says, "These are the ones that were used in the murder," and she gives them to you like you are supposed to do something--what, you don't know--wash them? Bury them? You don't know, so you scream and scream. Then he wakes you so your terror can stop. You thank him, and you think about terror and pain and how they're alike and different, and somehow you both sleep again.

Readers, you may feel that you have missed a blog post, but you have not. I have been rendered silent (for about as long as I have ever been silent here on this blog) by the fact that the man who loves me has lung cancer. There will be surgery. There will be chemo. Right now there's pain. And in as much as this man and I have endeavored to maintain our separateness throughout this love affair we've been having for the past 5 years, I cannot say how much I will write about the part of this story that is happening to him. But it is a fact that some small part of it is happening to me. So, I will go back to silence or write about that part.

And as for the regular proceedings of life in Pillville, my mother has a stronger pain pill that required giving up her martini for a few nights. That dream recounted above--well, I think it was probably me she murdered and just to really let me know how much she detested my delivery of the no alcohol tidings, she not only murdered me, but also asked me to clean up the mess. She had terrible back pain after returning home from the hospital, but it has abated and tonight, due to the tapering off of the meds, there will be a martini, she has just informed me. As for me, I think a glass of my favorite cheap red will go nicely with this.



And in Margaritaville today the sky looked like a pile of cotton balls.



The fishing was easy. If you were a heron.

Due to my inept photography, you can't see that the heron has a large fish in its beak. The seagull wants it.
And the guardian of the neighborhood was in her usual place, watching over all of us. Or at least the rodents in the empty lot. Blessings upon all of us is what I hope for. Even for the heron's fish. Even for those rodents as they feel the prick of talons as they are swept skyward.






Wednesday, June 26, 2013

A Brief History of My Mother's Hospital Rooms




I remember every hospital room my mother's been in--except for the first time she almost died. I was a toddler then, but heard the story many times. How my father rushed her to the hospital one evening and was told that her exploratory surgery would be at 9:00. He went back to his grocery store, assuming they meant 9:00 a.m. When he arrived at the hospital the next morning to be with her before she went under the knife, he found my mother recovering from major surgery to remove a tubal pregnancy.

The summer after my freshman year of college my mother developed pneumonia and a staff infection after surgery to remove her gall bladder. I wasn't in great shape myself that summer. A year earlier I'd given my infant son up for adoption. My pregnancy had aggravated the curve in my spine and my ribcage was twisting toward my heart and left lung. I needed surgery, too, and was scheduled for a month-long hospital stay the following January, but my mother's condition was more dire. What I remember is the shininess of the hallway where I was allowed to stand and talk to her. From that perspective, her isolation room seemed unnaturally deep, and the view out her window stretched forever into the green Iowa summer. If my mother died, I'd be expected to quit college and raise my younger brothers. This would be God's way of punishing me, I thought, for giving up my baby.

I was in my twenties when she had her first lung tumor. I flew from Los Angeles back to Iowa to see her. Her room was near the nurses' station and the kitchenette where ice and juice were dispensed was nearby, too. Her pain was excruciating, and I shuttled back and forth, asking the nurses for pain medication and permission to serve my mother a glass of juice or ice water while I craved a good stiff drink.

There were a dozen more minor procedures in the following decades. Stents, angioplasties, hernia repairs, minor cardiac procedures, cataract surgeries. By that time, my mother had moved to the east coast, and I was a continent away with children of my own. With the exception of a heart procedure meant to shock her misfiring heart into a more regular rhythm, I missed all of it.

My children were grown by the time the second lung tumor appeared. I was still on the west coast, but I was divorced and living alone. The removal of the pea-sized squamous cell tumor would require five days in the hospital, she told me. I planned to arrive on the east coast on day four, bring her home from the hospital, and spend a week with her as she recovered. Her first room in Washington Hospital Center was dark and cramped, and her bed was just a foot or two from the door. The morning I arrived to take her home, the crisis team was huddled over her. My mother looked terrified as she struggled to breathe through the oxygen mask pressed against her face. A petite woman in a white coat whisked me out of the room and told me my mother was being rush to ICU where she'd be put on a ventilator.

I spent the next month living in the guest quarters at WHC. My room resembled a slightly run-down 80s motel, but there was a laundry room, a microwave oven, free coffee, and a bank of vending machines that kept my self-soothing M&Ms habit well supplied. My mother's ICU cubicle, whirring like an engine room, was directly across from the giant control station where some ridiculous person sat at an elevated console answering the patient call buttons. "May I help you?" she'd respond in her polite and perky voice. I was polite and perky in return the first time I explained that my mother could not speak due to the ventilator tube rammed down her throat. The many subsequent times the voice responded to the call button in this manner, I assumed my psycho ax-murderer voice to repeat the explanation. Sometimes I simply shouted, "Get someone in here right now!"

The room my mother was transferred to after nine days in ICU was just as dark and crowded as the one before her breathing crisis. Finding it impossible to move forward head on, the nurses tended to every task by sidestepping between bed and walls, i.v. poles, and monitors. A nurse and an assistant performing a task together required a sideways duet that made them look like a pair of waltzing crabs. My mother's roommate had pressure ulcers and wept in her curtained bed so close at hand that it seemed criminally cold-hearted not to tear aside the curtain and comfort her.

After a week or maybe two, my mother was transferred to a slightly more spacious private room. There was a window that looked down on a courtyard, and I remember the day we finally stood together and looked down at the trees and benches. Not long afterwards she was released to a skilled nursing facility and managed to spend eight hours there before experiencing chest pains. She was transported by ambulance to Baltimore Washington Medical Center.

BWMC was the Ritz compared to the decaying inner city hotel ambience of Washington Hospital Center. While my mother was trapped in her spacious room getting sicker and sicker, I took breaks in the glass-topped atrium coffee shop, swilling caffeine and getting more and more agitated over the fact that I was about to lose coverage under my ex-husband's medical insurance. "My mother's dying and you're putting me through hell," I howled to an Aetna representative explaining for the umpteenth time that Aetna had all my medical records since all I was trying to do was switch from a group policy to an individual one. As I stood in an expansive hallway looking across a neatly mowed lawn into a row of trees explaining my woes in a phone call to a friend, she took charge and somehow convinced my ex-husband to keep me covered a month longer.

Before that month was up my mother was released from the hospital and Aenta approved my individual policy. I returned to L.A. and, after a stint in another nursing home, my mother moved in with my brother and his girlfriend in suburban Baltimore. Near the end of summer last year, she moved across the country to live with me. She's been an outpatient in two different surgical centers since her arrival here, and I've driven her to the emergency room twice. Yesterday morning she was transported to the ER by ambulance. That afternoon was her first admission to a hospital in southern California. A stay in the hospital is never like a hotel vacation, but given the jubilation I felt yesterday when my mother survived her latest crisis, this room with its ocean breezes and view of the mountains seems like the best destination this side of paradise.






Tuesday, August 16, 2011

Radiation Vacation Cancelled

I think I felt the good news coming.

Crickets belting their song like there was a Broadway show somewhere beyond the hibiscus hedge last night while the man who loves me and I feasted on steaming bowls of pasta topped with whole portobello mushrooms. Red wine and moonlight followed us into the living room where he hooked up his iPod, and we danced to  an old-timey tune. "Won't you be my teddy until my big bear comes around?" were the lyrics full of mischief and sensuality that  got me laughing. Laughing and dancing while the moon aims its beam through your window is some kind of holy delight.


And then the phone calls this morning. The daughter M. calling on her drive to work full of her usual love and light. The phone call from the doctor. The spot on my mom's lung is gone. The PET scan found nothing in the spot where there once was a spot. These things happen. A transient infection or inflammation. Not cancer. Of course there might be another spot sometime in the future. Of course. Anything could happen.

Next MOM PROJECT: hearing aid.
What? Did you say you were making Kool-Aid?
No, Mom, you're getting a hearing aid.

photo credit: scifigeektees.com


Tuesday, August 2, 2011

Money, Theater, Cancer and the Radiation Vacation or What To Do if You're a Millionaire



I've been freaking out about money this week. 


I have an immense attorney bill. Apparently, they forgot my  DIRECTIVE of a few months ago.


I have other big bills to pay this month, too. And I'm taking my mom on a "radiation vacation." We're going to stay at a hotel in Baltimore while she gets treatment for the new spot on her lung. I'm going to see if some of THE PLACES she used to work are still in business. I want to hear every story of hers that she feels like telling. We're going to go to the Inner Harbor and look at the boats. Have a drink while we stare out at the water. Stroll in her old neighborhood. Whatever she wants.


I'm doing it, damn it. I'll get caught up. There's a person I CAN'T WRITE ABOUT, and this quote was frequently uttered by that person because way back when I was doing set-dressing for a play by Thorton Wilder called The Matchmaker. This is a line of dialogue from the play:


The difference between a little money and no money at all is enormous...and the difference between a little money and an enormous amount of money is very slight.


Which is exactly what I thought when I took myself out to a play on Sunday afternoon. I had to go, I really did, and I was feeling crappy about the splurge. But when I got there, there was a sign on the door---something about, "economic stimulus," and all the tickets where reduced to $5.00. That's right.  THIS THEATER COMPANY does this $5.00 thing once per run--so you can't see this show for five bucks, but you could see a future one. But even if you paid full price for Heavier Than...it would be worth it.  And so next month when I have extra money again, I'll have to make it up to them because I really didn't expect to get a theater ticket for five bucks. I mean.... see quote above. 


So, dear millionaires, now that you can be pretty certain your taxes won't be raised, how about donating some money to the arts? Or cancer research? Or something.



Friday, July 8, 2011

Looking Behind Me



I whittled away the day at Baltimore Washington Medical Center where my brother had a total hip replacement on Wednesday. Today my mother joined him there as an outpatient for a pulmonary function test. I spent a couple hours shuttling between the two of them, remembering two years ago when I wore a path down the hallways while my mother was a patient there after a lung re-section that excised a cancerous tumor. BWMC was my mother's second hospital that July. By the time she was admitted she could barely swallow; she had trouble keeping food down and was in constant pain.

Today I recognized the hallway where I once stood at the window looking out across the parking lot at the trees while I talked on the phone with some cubicle-ite at Aetna Insurance. I was begging for confirmation that my new insurance policy would be activated before I was dropped from my ex-husband's policy. I had already had my chiropractor and dermatologist provide the minutiae Aetna had requested. "You already know everything about me," I explained. "I've been covered by Aetna for the last twenty years.  All I'm trying to do is change from my husband's Aetna policy to my own Aetna policy." The new policy department could not access the records department, they told me. The conversation didn't end successfully , but before I made it to the elevator to go back up to my mom, my phone rang again. It was my friend Suzanne.

I sobbed into the phone. "Go back to your mom," she said. Then she told me she'd call my ex- husband and ask him to keep me on his insurance policy for a few more weeks--which she did, and he agreed.

Now two summers later, I'm amazed and grateful that I still have my mother--and as I think back on the four years since my marriage ended, I'm so thankful for all the things that my friends have done to help me.