Showing posts with label caregiver. Show all posts
Showing posts with label caregiver. Show all posts

Tuesday, July 7, 2015

Comfort In/Dump Out

I revisited this piece today as I pondered what a friend is going through in a very tough caregiving situation.

How Not to Say the Wrong Thing

And while THIS PIECE is about grieving, try reading and substituting the word griever for caregiver. Caregivers, it seems to me, are grieving incrementally. Caregiving involves weeks/months/years of various traumas large and small, interrupted sleep, medication management, household and financial duties, sacrifices, and life or death decisions--all of which create a mountain of a million griefs.

For some reason I'm surrounded by people who say and do (even more important) the right things. You know who you are.
I present to you an ocean of gratitude.

Today's view from the sand

Monday, March 30, 2015

Monday: a Day in Pillville



Leap out of bed when the alarm sounds (new resolution.) Do the morning things. Put away the clean dishes. Tidy things. Walk. Update the caregiver when she arrives.

But I can't flip the switch in yoga. I'm breathing. I'm doing. But I'm not in the room. Or I am, but I'm not processing the instructions. Weird thing: At the end of savasana when the teacher's singing bowl makes it tone, I'm really discombobulated. The sound was coming from inside me. Maybe I fell asleep and was dreaming.

Then the anxiety. Oh my god, I have to get my car washed because I'm driving my mom to Miracle Ear this afternoon and I can barely see out the windows, and she always has to steady herself against the car and it's awful for it to be so grimy, but wait, Oh my god, I know I'm subbing for a fellow T'ai Chi Chih teacher next Sunday and Monday, but wait, she wasn't in yoga class so maybe it's this Monday, and now I probably can't take my mom to Miracle Ear and she is so tired of not hearing jack shit. So I make calls and texts while driving to the car wash. (Thanks, Siri.) And it all turns out swell, I didn't fuck up, but I lose my wallet and my phone in the carwash for a bit. Find them. Hooray! Get my car back. Clean! Hooray.

I go to CVS to use my 10 dollar coupon and buy headbands for my mom. I obsess for an hour. I buy a hot pink sharpie because I'm worried that her POLST form which the new doctor should have put on pink paper, but didn't will not be noticed by the paramedics if they come again. For months I've been keeping the old POLST in the front of the packet for visibility (remember this ) The paramedics are trained to look for pink.  And having two POLSTS confuses everyone. So the pink sharpie is super important. Which one? Which one? And the home care nurse calls me--ah I did fuck that up--I thought she was coming after I got home. Which is okay. The caregiver knows what's up.

And when I get home, the caregiver looks worried. "Your mom broke a piece off her dentures, and it's stuck in the drain." I should call the plumber--but no--who cares about the piece of pink plastic in the drain if it can't be glued back on? So I call the dentist. Email them a photo. Fixable? I wait to hear back. Still waiting.

Meanwhile I call the pharmacy about a prescription we're having trouble getting renewed. The doctor isn't responding to the faxes for a new prescription. Then I see that the name on the bottle is her old doctor. How can that be? It's been renewed soooooo many times since we changed doctors. Has the old doctor been signing off on it? Did the pharmacy enter the old info on a new label? I call the  cardiologist because it's a cardiac med. She  should be the one prescribing it anyhow. But they turn off their phones for 2 hours at lunch. And now I have to remember to call later.  Oh, and note to self, call the primary doctor for the post-hospital follow-up. But they're probably at lunch too. Note to self: follow up with dentist. Call the plumber if need be. Call the cardiologist and the primary doc after lunch.

Note to self: Your oldest California friends are coming to dinner. They're bringing a meatloaf. You've made a strawberry ice cream cake. It's going to wonderful. It's going to be fine.


The border of the POLST is now pink. That's wonderful. It's going to be fine.


Oh, and I found out recently that a rather long essay of mine is going to be published in what I think will be a very good anthology. It's going to be wonderful. It's going to be fine.


This is what's going on this Monday in Pillville. What's happening where you live?